31 January 2019, Thursday
Greetings from our family to yours and Welcome to another TrailMagick89 missive,
To begin with I want to say thank you to all of you for following us on our journey. Today I was going to share with the plan and the outline we have been working on to schedule the trips for this year, 2019, and for the next couple of years, 2020 and 2021; a total of more than 10 thousand miles by human powered means.
So, yesterday we were at a local business and we had a terrible experience with an employee. I refuse to deal with her again. The company, the manager/owner and the other employee are great. Well her attitude created arguments and things to be thrown which for me, yesterday, triggered seizures, yes more than one. The sudden impact of metal on metal scared the crap out of me.
When there are sudden noises around me, seizures happen. For me my five senses and sleeping usual trigger a variety of seizures. So today I decided to finally bite the bullet and chat about Epilepsy and outdoor adventures for myself. In September of 2017 I was told I have Epilepsy. Something I actually knew for more than a decade; getting a doctor to confirm it was the hard part.
Sweets and I have been homeless staying in a tent, we have backpacked around lower Michigan together, we have lived in Clio Michigan for the last couple of years and all that time when I have been up to it, we have gotten out and gone for walks, backpacked, ventured out on our trike and two years ago when I was finally diagnosed I was told I had to cut back on how active I was.
The neurologist basically told us that I would have to start relying on public transportation, most likely move into Flint (where his office was located), start taking seizure medicine that helped me get as big as I currently am, and on and on the list went. With most seizure pills being outdoors during the day when the sun is out is a no-no, constantly being hungry, hallucinating, tired from the moment I woke up to when it was time for bed and then sleep for 12 hours. And on and on the side effects went.
He told me that I had Epilepsy in a very cold callous way; he wrote it on the back of a pink office note. And if I had any questions about the type of Epilepsy I have, “Just Google it, you know what your symptoms are.” And my appointment was over. I was shocked that I had finally been diagnosed, yet I was not allowed to ask him any questions.
Come last Winter I was taken off the medicine by my primary care physician until the neurologist could see me again. My PCP took me off of the medicine after I gained nearly sixty pounds in four weeks. My diet at the time consisted on fruits, vegetables, and coffee and I was gaining weight. So as soon as I was told to wean myself off of the seizure pills that actually did not stop or even lessen the number of seizures I was having I called my neurologist’s office.
I had seen him the first week of January in 2018, it was a month later when I started coming off the pills, I was supposed to go back and see the neurologist the following May, he had rescheduled nine times from May until September. I am now seeing a new neurologist. The reason I mentioned all of that is I have health issues just like everyone else; the only difference is, my doctor’s actually have my best interests in mind.
As this year is beginning you will see changes to our website, our FaceBook page, Pinterest account, the creation of a Linked In page, YouTube channel, and of course of Instagram account. We are simple when it comes to backpacking and bikepacking gear as we are interested in gear that is of great value yet is at a decent price. The reason for that is: from the 120 months I have of homeless experience; if the gear that we have can stand up to that lifestyle, then it is good gear. Thru-hiking, bikepacking, or military uses can not touch the abusiveness of being homeless. Along with the homeless lifestyle we also look at whether the gear is easy enough to use for someone with Epilepsy.
On 7 February 2019, we will be picking up with the post that I was going to post. So, until next time.
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